Patient Information

Planning for End of Life

How to recognise if end of life may be approaching

• Supportive and Palliative Care Indicators Tool (SPICT-4ALL) – University of Edinburgh

Planning ahead for end of life

• Palliative Care Australia:
  • Dying to Talk Discussion Starter
  • Aboriginal and Torres Strait Islander Discussion Starter
• Hospice UK – How to Talk About Death and Dying
• In this video, a family discusses why advance care planning is important to them:

Putting it in writing

Appointing a medical decision maker

• NSW Government:
  • Appoint and Enduring Guardian
  • Make a Power of Attorney

Making a will

• Prepare a Will – NSW Government

Writing down your health care preferences

• Advance Care Plan (short version) – HNE Local Health District
• Making an Advance Care Directive (long version) – NSW Health

Additional information for specific groups

• ACP Talk – for sensitive religious and cultural advance care planning

Lesbian, Gay, Bisexual, Transgender or Intersex (LGBTI) patients

• A Guide to Advanced End-ofLife Care Planning for Gay, Lesbian, Bisexual, Transgender and Intersex People – Fight Dementia

Patients with an intellectual disability

• End of Life Care – NSW Council for Intellectual Disability

Patients with mental health conditions

• Advance Care Planning and Mental Health – Advance Care Planning Australia

Children and young people

• Advance Care Planning in the Paediatric Setting – Advance Care Planning Australia
• Caring Decisions: A Handbook for Parents Facing End-of-Life Decisions for Their Child – Royal Children's Hospital Melbourne

Information about dying

• Last Days of Life Toolkit – Clinical Excellence Commission

  Brochures in 9 different languages:

  • Approaching the Last Days of Life – Information for Patients
  • When Someone You Know is Approaching The Last Days of Life – Information for Families and Carers
  • Care in Last Days of Life – Information for Patients, Families and Carers
  • Considerations in Leaving Hospital to Dire at Home – Information for Patients Families and Carers
  • Medication Management for Patients Who Go Home to Die - Information for Families and Carers
  • When a Person Dies in Hospital: What to Expect and What to do Next - Information for Families and Carers